Rare disease
State to Cover Rare Disease Treatment Costs In Bulgaria
The government will fund medications and specialized foods for individuals over 18 with rare diseases, but eligibility hinges on starting treatment before adulthood. These changes, proposed by lawmakers from four parliamentary factions, are criticized by the non-governmental organization "Community Bridges Association" for being discriminatory.
In North Macedonia, Chronic Problems Hamper Treatment of Rare Diseases
Living with a rare disease in North Macedonia often means waiting on medication and paying extra for basic care.
Crown Custodian Margareta says increased awareness of rare diseases might help
Custodian of the Romanian Crown Margareta told a Rare Disease Day event hosted by Elisabeta Palace that by extending her patronage to the National Alliance for Rare Diseases in Romania she wanted to help sufferers of such diseases get treatment. "I understand very well what is happening in our country and in the world.
Novartis wins EURORDIS Company Award for Innovation, in recognition of long-standing track record in developing medicines for rare diseases
"We are delighted to have been recognised by EURORDIS and the rare disease community for our work in advancing the treatment of rare diseases in Europe and around the world.